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FAMILY TRAVELS AROUND THE WORLD BEFORE THREE CHILDREN WITH RARE GENETIC CONDITIONS BECOME BLIND

A family in Canada is traveling around the world to collect good memories to show their children different beautiful sights.


A family did this before three of their four children went blind to a rare genetic condition.



Edith Lemay and Sebastien Pelletier first noticed vision issues in their three-year-old daughter Mia, the eldest of their four children.



Mia was just three years old when Canadian couple Edith Lemay and Sebastien Pelletier first noticed that she was having vision problems.



A few years after they first brought her to see a specialist, Mia was diagnosed with retinitis pigmentosa, a rare genetic condition that causes a loss or decline in vision over time.


By this point, Lemay and Pelletier, who'd been married for 12 years, had witnessed that two of their sons, Colin, now seven, and Laurent, now five, were experiencing the same symptoms.




Their apprehensions were confirmed when in 2019 the boys were diagnosed with the same genetic disorder; their other son Leo, now nine, was given the all-clear.


"There's nothing you can really do," says Lemay, explaining that there is currently no cure or effective treatment to slow down the progression of retinitis pigmentosa.



"We don't know how fast it's going to go, but we expect them to be completely blind by mid-life."


Mia's specialist suggested that the parents ingrain her brain with "visual memories". 



Lemay realized that the best way to do that for her children was to pull them out of books and make sure they see things in the real world.


Lemay hopes that traveling the world will make the children more appreciative too.



 

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